Be part of
Betty’s Brigade
as we continue fighting strengthening our forces and fighting ALS together.
The financial burden associated with ALS care is staggering. Medical expenses of $100,000 per year and more are not uncommon as ALS progresses.*
Your donation will allow us to support these pALS and their caregivers, raise ALS awareness in order to accelerate the diagnostic process and support crucial ALS research.
*The European Journal of Health Economics 2021;22:1151–1166
Learn about ALS
ALS, or amyotrophic lateral sclerosis, is a progressive neurodegenerative disease that affects nerve cells in the brain and spinal cord.”Amyotrophic” comes from the Greek language. “A” means no. “Myo” refers to muscle. “Trophic” means nourishment. So, amyotrophic means “no muscle nourishment,” and when a muscle has no nourishment, it “atrophies” or wastes away. “Lateral” identifies the areas in a person’s spinal cord where portions of the nerve cells that signal and control the muscles are located.
As this area degenerates, it leads to scarring or hardening (“sclerosis”) in the region.
Betty’s Brigade ALS Foundation partners with Dr. Richard Bedlack, a leading ALS neurologist at Duke ALS Clinic, to accelerate patient-centered ALS research and care.
Dr. Bedlack is known for re-thinking how ALS trials are run, pushing for faster, more flexible, and more humane research models. Betty’s Brigade provides targeted funding and advocacy, allowing promising ideas to move forward without long delays. Together, they help bridge the gap between patients, clinicians, and researchers—something ALS research critically needs.
Learn About Our Upcoming Events
Featured Products
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Betty's Brigade Cap
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Betty's Brigade Hoodie
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Betty's Brigade Polo
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Betty's Briagde Puffer Vest
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Betty's Brigade Visor
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Betty's Brigade PomPom Beanie
About Betty’s Journey
In 2012, Betty began having falls that neither she nor her family thought were anything more than a couple of random trips. Except they kept happening, and more frequently. Eventually Betty saw doctors, physical therapists, orthopedics, then surgeons who performed a knew replacement, more PT and so on. For two years this went on until finally, in 2014, Betty was referred to a “Neuromuscular Multidisciplinary Clinic” (remember that term) where she received the diagnosis of ALS.